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A Perfect Match (Working Title)
There's nothing like mentioning ya got cancer to kill a conversation
-Erica Murray blog entry, Jan 29, 2008
Through equal doses of laughter and tears, A Perfect Match (working title) is a documentary-in-progress that follows the transformative journey of a vibrant and young multiracial woman living with life-threatening leukemia, whose hope for survival is a ‘perfect’ bone marrow match from a volunteer donor.
This documentary follows Erica and her sister Jaci. Erica becomes actively engaged, encouraging minority youth to get
on the marrow registry, while her rollercoaster journey takes Jaci's
life through an unexpected turn. The zest with which Erica lives
each day, the candor with which she confronts mortality, and the
humor with which she faces each difficult moment, brings us on a
deeply personal and inspiring journey.
Summary
and Background
Each year, leukemia strikes about 50,000 people in the United States.
Leukemia is a cancer that originates in the bone marrow, and as
many as 16,000 leukemia patients diagnosed each year require a bone
marrow transplant to survive.
The donation must be made by a volunteer donor with similar inherited
tissue type, and thus patients are most likely to match someone
within their family or of their same race or ethnicity. 70% of patients
needing a transplant do not have a family member who is a match.
These patients must turn to an international marrow donor registry
for a life-saving match. Overall, minorities are underrepresented
on the registry, due to lack of awareness about the donation process,
a high level of misperception on donation, and general skepticism
of the medical establishment. Because of this, the current odds
for a minority patient to find a matching unrelated donor is close
to 1 in a million.
Abroad in China, about four million people are waiting for life-saving
bone marrow transplants, but there are only 30,000 registered blood
donors in China, and 80,000 registrants of Chinese decent in the
United States.
Confronting these bleak statistics is Erica Murray, a Eurasian (half
Chinese and half Caucasian) young woman diagnosed with leukemia,
yet bursting with the desire to live. Through the portrayal of Erica's
journey with leukemia, the documentary aims to accomplish a few
goals:
- To bring
compassion to the unjustifiable struggle that leukemia patients
endure, through an intimate connection with a lovable young woman.
- To bring
awareness to the desperate need for bone marrow donation, and
compel people, especially of mixed race and minority descent,
to register to donate.
- To dispel
the myth that donation is painful or dangerous. Rather, that it
is an easy and safe process in which donors can choose to donate
stem cells directly from their veins.
- To spark
discussion on our own actions and existence in this world as we
reflect on our own mortality.
I met Erica during her numerous outreach efforts to locate a donor:
through her blog, through Youtube, at events and as a guest on ABC7.
Between hospital visits and chemotherapy, she had been thrust into
the necessary position of advocating for her own cause, for her
own survival. What grabbed my attention was a Youtube video that
generated over 38,000 hits. In it, Erica and her sister sing to
the tune of Barenaked Ladies' "If I had a Million Dollars",
with the words "If I had a Real Good Donor". Their song
is filled with wit, smiles and plans for the future, but underneath
is a searing urgency.
I had two reactions viewing this: 1) We look like sisters. I'm Eurasian
too. I could be the match she needs and 2) Why is she the one doing
this? Does every patient needing a bone marrow transplant launch
his/her own outreach campaign? I found that answer in numerous other
personal websites, each patient or family pleading with the world
to register to donate and become that life-saving match.
One week later, with a crew of three, we filmed Erica's first interview.
Soon after, Erica became a co-producer, invested in telling her
story for the benefit of all leukemia patients in her situation.
After almost a year of filming, Erica passed away in December of
2008, devastating those of us who had come to love her.
The more than
30 hours of footage that remains holds a deeply personal and inspiring
journey. The zest with which she lived each day, the candor with
which she confronted mortality, the humor with which she faced each
difficult moment, and the compassion she shared with those she loved,
will inform and inspire her documentary.
The
Crew
Naomi
Ture
Director / Producer
/ Videography
Chris
Faber
Co-Producer
/ Editor
Erica
Murray
Co-Producer
Nick
Davila
Director of
Photography
Judy
Murray
Videography
Roman
Chiu, Renu Kumar, Andrew Castillo
Production Assistance
Ravi
Patel, Rafael Alcala
Edit Assistance
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Register
to Donate Bone Marrow Stem Cells
The more
people who register to donate bone marrow stem cells, the
better the chances for all patients in similar conditions
to Erica to receive the match they need to survive! This is
now a VERY easy and safe process that can save the life of
someone with leukemia.
For
information on bone marrow drives near you, go to www.marrow.org.
If you are a minority, you can order a free home kit at www.aadp.org.
Support
this Documentary
Thank
you for your interest in this cause. If you would like to
contribute your talent as editor, audio technician, musician,
videographer, production assistant, fundraiser, grant-writer
or advisor, please contact me at naomiture@gmail.com.
To provide
financial assistance, please visit my fundraising
page to donate via check or Paypal. Funding is essential
to enable this project to continue. Thank
you for your support!
Naomi Ture, Producer / Director
The
Short and Long of it
Documentary
video is a compelling medium for sharing this story. If we
bring understanding through a connection with one person's
fight with leukemia, we can bring awareness to the broader
cause.
A Perfect Match: Feature
Two pieces
are being produced: a feature-length documentary and a 6-minute
short. The long-form will reach a broader audience with wider
exposure to this issue. In style, the feature departs from
the short by using a more varied, personal, as well as more
emotionally and physically candid style. This is appropriate
to a longer piece that affords the audience the time and space
to experience, reflect on and absorb the deeper existential
issues and transformative power of Erica's journey.
Campaign Short: 6-minutes
The documentary
short will be provided as an educational resource for bone
marrow donation drives, as a supplement to outreach talks
or lectures, and through online distribution for organizations
such as Asian American Donor Program and National Marrow Donor
Program (Be the Match).
Remembering
When she first unfurled her laughter into the wind, we knew that the world would never be the same
-Storypeople
Erica's
recent passing has devastated her close circle of family and
friends, and hundreds of others, some of whom have only known
her through her blog. Her life and struggle with leukemia
has touched our hearts, and the vigor with which she moved
through this world is an inspiration.
Erica
and I began co-producing her documentary together in February,
and though we can no longer work together, her spirit of humanity
and compassion will continue to drive this documentary.
Erica's
Search for a Bone Marrow Match
When Erica
was first diagnosed with leukemia 3 years ago, her best chance
of survival was to find a perfect bone marrow match.
Her Eurasian
(half Chinese and half Caucasian) ethnicity made it impossible
for her to find a perfect bone marrow donor match. Very few
minorities and people of mixed race are on the bone marrow
donor registry, possibly due to lack of education on the issue
or the misinformed fear that donating is painful. A perfect
match (6/6) increases a patient's chances to defeat the leukemia.
Because
Erica could not initially find a match, she underwent 2 years
of aggressive chemotherapy treatment. When her leukemia returned,
it further necessitated a bone marrow transplant. After numerous
outreach efforts through her blog, through Youtube, at events
and on television, Erica was delighted to find a 5/6 match,
and underwent a successful bone marrow transplant.
No patient
or family facing leukemia should need to go through this long
and arduous search process to find a life-saving match. This
documentary hopes to bring to light the desperate need for
bone marrow donation, and show how easy it is for an individual
to save a life.
Follow
Erica's Blog at:
www.ericamurray.blogspot.com
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